Morgellons: The legitimization of a disease: A Factual Guide by the World's Leading Clinical Expert
M**Y
Must Read for Morgellons Patients and Caregivers
Morgellons disease is a devastating disease that is not accepted or understood by the medical community. It ravages its victims, leaving them to suffer inhumanely. As a physician and as a patient with this disease, I am forever indebted to Dr. Ginger Savely for her valiant effort to legitimize this malady. The book does a great job of differentiating medical facts backed by sound research from the numerous, fanatical myths. While there are still several unanswered questions regarding why Morgellons Disease manifests in only 6-10% of Chronic Lyme patients, this book is a fantastic base to spur further research. She poignantly details several patient cases that only begin to detail the tragedy that transpires in patients' lives. I highly recommend this book for any patient suffering to educate themselves and gain hope. It will also be an invaluable tool for loved ones of those who suffer, so they can better grasp the reality of Morgellons Disease. Finally, medical professionals can gain an understanding of what is involved in the diagnosis and medical management of this complex disease. Patients are not delusional and deserve care. Thank you Dr. Savely for bravely speaking up for those of us who are discounted by mainstream medicine.
O**D
Thank you, Dr. Savely
I don't usually write reviews, but I was surprised by a few comments that have nothing to do with content. I do not think Amazon is the place to debate the validity of Morgellons; however, as a doctor, I have treated patients with these debilitating symptoms. Whether one licensing board is entitled to exclusive ownership of a degree title, that was resolved in the 1950s when academics tried to claim the title "Dr". I am not fundraising, I have no covert motive, and I have more important things to think about than font size. Whatever we call it, my patient's symptoms are real. Serious discussion within the medical community about Morgellons is long overdue. I applaud Dr. Savely for her persistence. She has given disenfranchised patients a voice and doctors the foundation to begin pooling data. This is how we will help our patients.
J**J
A friend, a companion, a path in a wild forest
My ordeal began in July 2016. What was originally a painful tick bite from way back in 2005 became a full-blown parasitic infection involving multiple systems of my body. My immune system was compromised and a multitude of infections took root. Life became very complicated.Between July 2016 to March 2017 I saw 17 doctors of which four were Infectious Disease, three dermatologists, two urologists, one immunologist, and a large handful of MD's with varying skill and experience, but mostly abysmal intellectual curiosity. None of these doctors were helpful to me.My search for help also led me to 13 ER visits, several admittances, and one very bad experience where a professional abused their power and imposed their will on me. Modern hospitals have a shameful lack of knowledge about tick-borne disease and parasitic infections.Through this experience I have come to understand that Health Canada is an utter failure in terms of the diagnosis and treatment of tick-borne diseases. There is no knowledge to be had here, and the MD's are scared for their license when being asked to sign off on outside lab tests. Fear pervades the medical profession in Canada. Canadian labs do junk tests that are unreliable and unnecessarily cause suffering.Lyme and morgellons are close cousins, but Lyme is not morgellons. Tick-borne infections typically present co-infections, and ticks can carry several types at the same time. Lyme (Borrelia), Bartonella, Babesia, Erlichia, Mycoplasma, Rickettsia are just a few of them. These are well-documented.In this book Dr Savely is casting a huge floodlight on a sorely ignored and horrible disease, the disease of fibers. If you are unexperienced with morgellons, the symptoms can seem ripped out of a science fiction book, but I assure you they are in fact true.Dr Savely presents two poignant case histories to clearly explain how miserable life can be once you have this problem. Especially when nobody seems to understand it or want to help you.Dr Savely also discusses the various solutions that have worked for the many many tick-borne disease cases she has worked on, and that portion of the book can serve as a guide for MD's seeking to bring their level of knowledge up to date.DIY ninjas may also be tempted to look into those solutions, and I can say from experience that many if not all of her suggestions have a sound basis not only by being close to those of Dr Joe Burrascano (ILADS, who has worked on tick-borne disease treatment since at least 1984 - when his first treatment guidelines edition was issued), but also because her philosophy is integrative, and overlaps with natural and holistic medicine.If your tick bite has become a nightmare, read this book and it should give you some peace in knowing that you are most definitely not alone. The solutions are also another reason. Get in touch with Dr Savely and ask about availability for a meeting, her website and email address are easy to find on google.Lastly I would like to thank many people on Lymenet (flash dot lymenet dot org) for helping me get to Dr Savely, to treatment, but most of all - to a state of mind that I have not remotely had since July 2016. If you want to read my story go visit lymenet and see my post "Desperate in Montreal, Canada" in the "Seeking a Doctor Section".Buy this book!And then check out Lymenet, you'll be happy you did.
A**R
Very informative
There is a huge amount of misinformation about morgellons on the internet and a host of conspiracies and crazy, baseless theories. This book rightly puts all that nonsense aside and concentrates on the known medical facts from someone with first hand experience of treating and helping morgellons patients over a number of years. Essential reading for all morgellons sufferers and medical professionals who are called upon to treat them. Highly recommended.
A**Y
Its a shame the author said people with Morgellons go ...
Its a shame the author said people with Morgellons go on to develop OCD as this is still saying people with Morgellons are mentally ill. OCD is a mental illness and Morgellons has nothing to do with OCD.
A**R
This is an excellent read for health professionals and suffers alike.
This is an excellent read for health professionals and suffers alike. It has comprehensive pictures and explanations and is the startof serious research and help this community needs now. Dr Ginger Savely has been a fore runner in providing help and compassion for sufferers who are mostly spurned by the medical profession. I hope this book will be used as a reference for Drs and GPS in the UK and States.
K**9
An OK book.
An OK book. My e-book version got " revised" during its download. Ginger Savely is in a difficult position on this subject. I am sure the book has been vetted and approved by CDC BMA ( UK) - - et al
R**H
very informative
This was a very helpful book for me to read. There is so much useful information about morgellons and up to date research results.
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